Resources for Epilepsy Care and Education

Access knowledge, tools, and guides to empower teachers, parents, and healthcare providers in epilepsy care.

About Epilepsy

Epilepsy is a neurological disorder characterized by recurrent seizures caused by abnormal electrical activity in the brain. It affects individuals of all ages and is one of the most common neurological conditions worldwide. Seizures can vary in intensity and manifestation, ranging from brief lapses of attention to severe and prolonged convulsions.

Understand Seizures

Focal Seizures

Originate in one part of the brain and may or may not involve a loss of consciousness.

Generalized Seizures

Involve both sides of the brain and typically cause a loss of consciousness.

Absence Seizures

Brief lapses in awareness, often mistaken for daydreaming.

Tonic-Clonic Seizures

Involve muscle stiffening and jerking movements, formerly known as 'grand mal' seizures.

Common Myths and Facts About Epilepsy

Understanding epilepsy starts with breaking misconceptions and spreading awareness.

Myth: You can swallow your tongue during a seizure.

Fact: It is physically impossible to swallow your tongue.

Myth: You should put something in a person's mouth during a seizure.

Fact: No, putting objects in the mouth can cause injury.

Myth: Epilepsy is a MENTAL Disorder.

Fact: It is a Neurological disorder.

Myth: People with epilepsy are below normal in their intelligence.

Fact: Epilepsy does not affect Intelligence OR Memory.

Myth: Marriage can cure epilepsy.

Fact: Of course not, Medicine do...

Myth: Seizure can be STOPPED by giving KEY in the hand or making a person SMELL an ONION/SHOE.

Fact: Act stops on its own, not due to these factors.

Myth: Epilepsy is Contagious.

Fact: Epilepsy does not spread from one person to another.

Myth: Anyone who has epilepsy will have convulsive seizure.

Fact: A convulsive or tonic-clonic seizure is one of many different types of seizures.

Myth: People with epilepsy can't drive a CAR.

Fact: If free from seizures, one can drive a car.

Myth: All seizures involve loss of consciousness.

Fact: If a person has a simple partial seizure, he/she will know what is happening and be aware that they are having a seizure.

Myth: Epilepsy will affect a person's employment.

Fact: Most people with epilepsy are able to work at whatever they choose to do.

Myth: Epilepsy will affect the baby born to an epileptic mother.

Fact: 90% of the babies born to epileptic mothers are healthy.

Myth: Epilepsy is difficult to control.

Fact: 70% of people achieve freedom from epilepsy by effective management.

Myth: Epilepsy is an inherited condition.

Fact: In many cases there is no family history at all.

Understanding the Causes of Epilepsy

Epilepsy may arise due to various factors, including:

Genetic Causes

Inherited genetic mutations affecting brain function.

Structural Causes

Brain injuries, tumors, strokes, or cerebral malformations.

Metabolic Causes

Infections (e.g., meningitis), hypoglycemia, or electrolyte imbalances.

Autoimmune Causes

Autoimmune encephalitis or multiple sclerosis.

Developmental and Neurological Disorders

Cerebral palsy, autism spectrum disorder, or intellectual disabilities.

Toxic Causes

Drug use, withdrawal from sedatives, or poisoning.

Idiopathic Causes

No identifiable cause in some cases (idiopathic epilepsy).

Diagnosis and Management of Epilepsy

Medical History and Clinical Evaluation

Detailed description of seizures, family history, and neurological exam.

Electroencephalogram (EEG)

Records brain electrical activity to identify abnormal patterns.

Magnetic Resonance Imaging (MRI)

Helps identify structural causes of epilepsy.

Blood Tests

To check for metabolic imbalances, infections, or other underlying causes.

First Aid Resources for Seizures

Handle seizures confidently with these step-by-step guides:

Midazolam Nasal Spray

Administered intranasally to stop seizures.

Steps:

  1. Remove the spray from its packaging.
  2. Hold the spray with your thumb on the plunger.
  3. Place the tip into the nostril and press the plunger.

Prevalence and Impact of Epilepsy

Global Prevalence

According to the World Health Organization (WHO), around 50 million people globally live with epilepsy, making it one of the most prevalent neurological disorders.

Epilepsy in India

In India, an estimated 10 million people live with epilepsy. A significant gap in awareness, diagnosis, and treatment accessibility remains, especially in rural areas. Initiatives like Epilepsy Smart Schools and telehealth services aim to bridge this gap.

Role of School Staff in Epilepsy Management

Understanding Individual Needs

School staff must be familiar with each child's specific seizure action plan.

Availability of Emergency Medication

Ensure prescribed emergency medications are readily available and stored securely.

Creating a Safe Environment

Implement safety measures to provide a secure and supportive environment.

Training and Guidelines

Establish clear guidelines for managing seizures and provide proper training to staff.

Promoting Awareness and Inclusion

Educate staff and students about epilepsy to reduce stigma and foster an inclusive environment.

Seizure Action Plan

Importance of a Seizure Action Plan

A Seizure Action Plan (SAP) is a vital tool for managing epilepsy and seizure disorders, especially in environments like schools, workplaces, or public settings where individuals may require immediate assistance.

  • Enhances Safety
  • Reduces Anxiety
  • Supports Individualized Care
  • Facilitates Prompt Action
  • Promotes Awareness and Education
  • Improves Coordination with Healthcare Providers
  • Empowers Independence

Ways to Support and Include People with Epilepsy

Educate Yourself and Others

Learn about epilepsy and spread awareness to reduce stigma.

Provide Emotional Support

Be a source of emotional support for individuals and their families.

Promote Safety

Help develop seizure action plans and ensure safe environments.

Offer Practical Help

Assist with transportation, medication management, and daily tasks.

Support Inclusion

Advocate for accommodations at school or work and encourage participation in activities.

Encourage Medical Follow-ups

Remind individuals to attend regular check-ups with their healthcare provider.

Employment and Travel with Epilepsy

Employment Tips for People with Epilepsy
  • Know Their Rights: Understand legal protections against workplace discrimination.
  • Provide Job Training: Offer tailored training programs to enhance skills.
  • Workplace Accommodations: Implement epilepsy-friendly workplace measures.
  • Encourage Open Communication: Develop seizure action plans for the workplace.
  • Advocate for Remote Work: Consider flexible work options when appropriate.
  • Foster Inclusivity: Promote epilepsy awareness in the workplace.

The Role of Caregivers in Epilepsy Management

Emotional Support

Provide empathy, encouragement, and help build confidence.

Education and Advocacy

Learn about epilepsy, raise awareness, and advocate for rights.

Lifestyle Management

Help maintain routines, manage triggers, and implement safety measures.

Social and Behavioral Support

Assist with social interactions and manage potential behavioral issues.

Academic Support

Work with schools to ensure appropriate academic accommodations.

Healthcare Coordination

Manage medical appointments and communicate with healthcare providers.